Monday, October 8, 2012

Ella's Vaccination Story

NOTE**ELLA is not currently in the hospital, or sick, she is happy, and we are all doing well... She has some things that we still work on, and we arent out of the woods, but as for now she is ok....

Once we got Ella's medical records, we realized that it wasn't her two year old vaccinations, which we could have sworn she had. It was her 18 month old vaccinations. ( We are in the process of going back to our insurance to make sure that no vaccines were billed at her two year old visit. ) We talked to a few people at the National Vaccine Information Center, and they said that they have had thousands of stories where kids get vaccines, and their symptoms get worse and worse over time. Each childs body is different in the way it reacts. The dtap and HIB are the ones that Ella received, oddly enough the HIB adverse reactions mirror all the rest of them. We are adding this, because we always want to be accurate with her story, never fabricating, sticking as close to when things acctually happened. For the most part we were accurate, once we got her records we realized that she had even more symptoms prior to august... she had been dealing with for months.

We fully vaccinated all of our kids, on time. We never knew that our choice would end up hurting her, we are thankful she didn’t become autistic, or even worse, die. We give our guilt to Jesus, knowing that we made the best choice possible with the information we had. We never researched, we just did it because we were vaccinated, and our parents were vaccinated, and so on. We did not make an informed choice. We regret this, and in telling Ella’s story, we aren’t trying to bring guilt upon you, we are trying to bring you information, to bring it to light, so that more parents can see just what vaccines can do. Please do us a favor, do Ella a favor, please read this, in its entirety, watch the videos if you can, and look at the list of ingredients, then do your own research if you are not yet convinced. Our whole heart prays this never, never happens to anyone else, and the only way we can start to make that happen is by sharing our stories, our friends stories. Please don’t dismiss this thinking it will never happen to you, or the benefits outweigh the risk, they don’t. The vaccine companies will not admit that any of the cases against them are from vaccines; they won’t say that it was the vaccine, yet millions have been paid retributions because of them. Thank you for taking the time to read this.

In april of 2011, we took our beautiful girl, Ella Mae in for routine 18 mo old shots. Ella received the HIB and Dtap vaccine combo, called Pentacel, and went on with life as usual. Shortly thereafter Ella started having trouble going to the bathroom without help of a laxative, a couple of months later Ella began complaining her head hurt…she was a 2 year old so bonking heads kind of comes with the territory, but she began saying it more and more. After this progressed she would say "I bonk my head" (when she was standing right in front of us and obviously didn’t hit her head at all) then the "spacing out" began. She would say she bonked her head and then stare off at nothing for minutes at a time, no amount of calling her name, or noise would bring her back. She just was present without being present; after the terribly long 3 or 4 minutes had passed she would come out of it. Ella started smiling less, showing less emotion, her expressions became few and far between, she kind of always had a frown on her face…her eyes became lifeless, with a dull glaze over them.

Those moments were enough to seek medical help, too see what on earth was going on with our daughter. About the same time we decided to get help, more signs manifested themselves. At first we thought falling asleep in her high chair was cute, and took pictures of it, until it started happening regularly. At first we dismissed a lot of her symptoms; we chalked it up to thinking, "hmm that’s weird." We began asking each other, "Honey do you notice that Ella has been doing such and such a lot more?"

That’s about the time when the uncontrollable night terrors started, screaming gut wrenching screams for more than half an hour at a time in the middle of the night, with 3-4 episodes a night, while complaining of her head hurting and her eyes hurting. She would be walking and then just suddenly fall down, none of our other kids around to push her, there was nothing to slip on, just seemed like suddenly she had problems walking. She was sensitive to light as well as photography, sunglasses didn’t help, she would scream when it was too bright. We discovered later that she had lost almost all muscle tone, which was affecting her ability to chew, walk, to balance, to pull herself up onto chairs, and she couldn’t even go to the bathroom without the aid of a laxative because her body didn’t have the muscle to get it out. The frequency of these symptoms increased steadily and Ella’s ability to function decreased steadily. Things she had been able to do consistently she was no longer able to do. She lost the ability to feed herself, and to pick things up, gross and fine motor skills had diminished greatly.

Because of the struggle it was to eat, she lost all interest in eating. At one point she went from eating a normal 1300 calories to a 200 calorie intake primarily of liquids. Later through intense therapy (and praise God for them) we slowly introduced first more calories through multiple supplements, and then more variety.( I remember crying when Ella took her first bite of a chicken nugget, it was her first bite of meat protein in months!) Ella also had texture issues something she didn’t have before. When she would get something on her hands or on her face she had to stop what she was doing in order to get wiped clean. She couldn’t focus enough to continue with whatever she was doing until the "problem" was resolved.

Ella was hospitalized twice, once because we were desperate because she wasn’t eating at all, coupled with all her other symptoms so we went to the emergency room. She was admitted and our first visit to the hospital was a few days until they could get her to take in some calories at least, we were told it had nothing to do with vaccines, and ordered to follow up with our pediatrician.

The second time we went to the hospital, she had lots of prolonged "space outs" we weren’t sure if they were seizures, so the doctors ordered an EEG, cat scan, and blood work, they did a half hour EEG (instead of the prolonged 24 hour one) they said nothing showed up with any of it. Ella was walking around her room and the doctors and nurses witnessed her falling down, her space outs, and even her night terrors, and they said "we see that she has problems but we don’t know what it is or how to fix it" They sent us to a neurologist and an ophthalmologist. The neurologist ultimately said it’s not a problem with her brain, but didn’t order an MRI. The ophthalmologist said that she might need glasses in the future but that her eyes weren’t the problem either.

This left us desperate…We had tried a chiropractor upon recommendation, because at this point we were willing to do ANYTHING to get her better! His first question was, "was she recently vaccinated?" I said yes within the last 4 months, but assumed he was a little slice of crazy, he must have been was one of those hippy people who didn’t believe in the medical world. At the same time this got us thinking, and researching that it could be that even more. We were willing to research all possibilities in order to help our daughter, as the doctors were willing to do nothing for her. We started begging for a referral to a speech therapist so she would at least eat, it was finally granted, after a long tearful conversation with our pediatrician.

Ella went in for an assessment at the achieve center. The assessor realized that Ella had many more problems than speech therapy alone would correct. We were referred to Stepping Stones, and Ella was assessed by the occupational and physical therapist. Ella was scored at the level of a 10 month old; she was 2+ at this point. She had been previously talking fine and all her motor skills were there. The milestones were being met and now she had regressed a full year backwards.

The therapists came to our house (another blessing) Ella had a physical therapist, speech therapist, dietician, and occupational therapist all assigned to her. She had anywhere from two to four appointments a week, we then got connected with the Infant Toddler Network; they acted as our advocates and really pushed for her to get better.

Instead of celebrating riding a bike with training wheels for the first time, drawing a circle, or watching her play pretend, we celebrated each little victory, from 200 calories to 300 and so on. Being able to pick up a fork, even if it was the wrong way to do it, was a victory. New foods, not falling asleep in her chair at the dinner table, having a bowel movement that didn’t make her scream and cry, these were things we celebrated!

After months of rigorous therapy Ella got worlds better, but still not completely healed. We were cleared from therapy, with things to work on as she grows, as we were moving to Peru, in South America. Her muscle tone is still lower than it should be. She still has trouble going to the bathroom without Miralax (a laxative), she still has trouble climbing things, and she still doesn’t sleep a whole night without waking up and screaming. At 3, now Ella has no concept of potty training she doesn’t know when she needs to go to the bathroom only when it has happened. We rejoice in all the daily victories we see in her but we would be fools if we did not acknowledge that there is a lot of work ahead of us. This is our story, Ella’s story, this is why we choose to no longer vaccinate, and why we will fight to get her story heard.

My research included the National Vaccine Information Center website, and YouTube. I went on YouTube and typed in vaccines gone wrong, or vaccines with adverse reaction. Tons and tons of video’s not from "anti-vaccine radicals" but from Moms, sisters, aunts, grandparents, of kids, and some adults who were affected by a vaccine, MMR, Gardasil, Hep B, Dtap, Flu vaccine… Why do you think that the vaccine companies set aside millions of dollars each year to pay families of those affected by vaccines? (
http://www.nvic.org/injury-compensation.aspx)


http://www.nvic.org/




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http://www.youtube.com/watch?v=_JXEi6LJSAE- here is the list of the vaccine ingredients, let me know if you are ok with any of them going into your child, I certainly am not… I couldn’t believe, I never knew. Upon reading these to my mother, she asked me to stop, because it was so disgusting.

 

From the Vaccine maker:

Ella had most of the symptoms; we found a few that she wasn’t medically diagnosed with, because our doctors/hospitalists refused to do any further testing. We believe without a shadow of a doubt that is was because of her vaccination. You don’t have a normal, perfect, healthy 2 year old child that all of a sudden regresses to that of a 10 month old for no reason. There was a cause, and based on the symptoms we believe it was due to the dtap/HIB.)



fever; headache; dizziness; malaise; irritability.

diarrhea nausea. myalgia, and mild ataxia.

Encephalitis, and Guillain-Barré Syndrome (GBS)

((The disorder is characterized by symmetrical weakness that usually affects the lower limbs first, and rapidly progresses in an ascending fashion. Patients generally notice weakness in their legs, manifesting as "rubbery legs" or legs that tend to buckle, with or without dysesthesias (numbness or tingling). As the weaknesventilatoryHYPERLINK "http://en.wikipedia.org/wiki/Mechanical_ventilation" assistance for treatment of Type II respiratory HYPERLINK "http://en.wikipedia.org/wiki/Respiratory_failure"failure.[5] Facial weakness is also common. Eye movement abnormalities are not commonly seen in ascending GBS, but are a prominent feature in the Miller-Fisher variant.

Sensory loss, if present, usually takes the form s progresses upward, usually over periods of hours to days, the arms and facial muscles also become affected. Frequently, the lower
cranial nerves may be affected, leading to bulbar weakness, oropharyngeal dysphagia (drooling, or difficulty swallowing and/or maintaining an open airway) and respiratory difficulties. Most patients require hospitalization and about 30% require of loss of proprioception (position sense) and areflexia (complete loss of deep tendon reflexes), an important feature of GBS. Loss of pain and temperature sensation is usually mild. In fact, pain is a common symptom in GBS, presenting as deep aching pain, usually in the weakened muscles, which patients compare to the pain from overexercising. These pains are self-limited and may be treated with standard analgesics. Bladder dysfunction may occur in severe cases but is usually transient.)

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